In the spotlight - On irresistible forces and immovable objects
Article dated: 16 October 2008
In recent years, data owners and depositors have – quite rightly – been
increasingly concerned with maintaining the confidentiality of the
respondents who take part in their surveys. One outcome of this concern has
been the removal of detailed geographical identifiers and variables from end
user licence datasets. At the same time, driven in part by advances in
multi-level modelling, there has been a growing demand from users to gain
access to ever more and ever finer geographical information. With the help of
the data depositors, all the ESDS services have worked hard to find a balance
between the ‘immovable object’ of promised respondent confidentiality and the
‘irresistible force’ of user demand for access to potentially disclosive
geographical information.
In the case of longitudinal data, finding that balance is especially tricky as a
respondent’s location may change several times over the course of a study,
making it more likely that a case will be unique not just in the sample but
also in the population. As gatekeeper to the data, ESDS Longitudinal has worked
alongside the data depositors to find solutions that minimise the risk of
disclosing respondent identities and maximise the opportunities for secondary
analysis. One solution has been to make some previously unreleased data
available via the Special Licence process. The service now provides
Special Licence access to six low-level geography datasets for the three birth
cohort studies, with plans in place to release seven datasets containing
geographical markers for the British Household Panel Survey (BHPS) later in the
autumn. Over 40 users have so far taken advantage of these previously
restricted data becoming available.
Of course, the risk of disclosure is not the only consideration in restricting
access to data collected as part of the major longitudinal studies. Data may be
considered sensitive for other reasons. Many of the major panel and cohort
studies are now producing – or soon will be producing – biomedical data from
biological samples taken from respondents. The ability to control for
biomarkers in social science analyses is likely to open up new strands of
research and challenge conventional wisdom. In keeping with its policy to
control access to geographical information very tightly, ESDS Longitudinal will
endeavour to work closely with the key data depositors in examining ways in
which sensitive biomedical data can be shared. The service aims to be
at the forefront of developments in this field, certainly in terms of keeping
social scientists abreast of what will undoubtedly be a changing research
landscape.
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