ÿþ<!DOCTYPE HTML PUBLIC '-//W3C//DTD HTML 4.01//EN'> <html><head><title>Title Page</title><meta http-equiv='Content-Type' content='text/html; charset=iso-8859-1'><style type='text/css'>h1 { margin:0px 0px 0px 0px; padding:0px; font-size:large; font-weight:900; font-family:verdana, arial, helvetica, sans-serif; text-align:center; color:#000; }h2 { font-size:medium; font-weight:900; font-family:verdana, arial, helvetica, sans-serif; margin:10px 0px -2px 0px; padding:0px; color:#000; }h2.myclass { font-size:medium; font-weight:900; font-family:verdana, arial, helvetica, sans-serif; margin:10px 0px -2px 0px; padding:0px; color:#000; text-align:center;}h3 { font-size:13px; font-weight:700; font-family:verdana, arial, helvetica, sans-serif; margin:0px 0px -1px 0px; padding:0px; color:#07a; }h3.myclass { font-size:13px; font-weight:700; font-family:verdana, arial, helvetica, sans-serif; margin:0px 0px -1px 0px; padding:0px; color:#07a; text-align:center;}h4 { font-size:x-large; font-family:garamond, serif; color:#09f; text-align:center; margin:0px 0px 5px 0px; padding:0px;}h5 { font-size:13px; font-family:verdana, arial,sans-serif; font-weight:600; margin:0px 0px 5px 50px; padding:0px;}i.myclass{color:#07a;}</style></head><body> <H1> Hidden Young Carers: the Experiences, Needs and Resilience of Children Caring for Parents and Relatives with HIV/AIDS in Tanzania and the United Kingdom, 2006 </H1> <H3 class='myclass'> UKDA study number:6002</h3> <H2 class='myclass'>Principal Investigators </H2> <H3 class='myclass'> Becker, S.<br>Evans, R.<br>University of Nottingham. School of Sociology and Social Policy<br> </H3> <H2 class='myclass'>Data Collector</H2> <H3 class='myclass'>Evans, R.<br></H3> <H2 class='myclass'>Sponsor</H2> <H3 class='myclass'>Economic and Social Research Council<br></H3> <H2 class='myclass'>Distributed by</H2> <H3 class='myclass'>UK Data Archive, University of Essex, Colchester.</H3> <H3 class='myclass'> March 2009 (2nd Edition) </H3> <div style='page-break-before:always'></div> <H1>&nbsp;</H1><H1>Bibliographic Citation</H1> <H5> All works which use or refer to these materials should acknowledge these sources by means of bibliographic citation. To ensure that such source attributions are captured for bibliographic indexes, citations must appear in footnotes or in the reference section of publications. The bibliographic citation for this data collection is: </h5> <H5> Becker, S. and Evans, R., <i> Hidden Young Carers: the Experiences, Needs and Resilience of Children Caring for Parents and Relatives with HIV/AIDS in Tanzania and the United Kingdom, 2006</i> [computer file]. <i>2nd Edition.</i> Colchester, Essex: UK Data Archive [distributor], March 2009. SN: 6002, http://dx.doi.org/10.5255/UKDA-SN-6002-1. </h5><H1>&nbsp;</H1> <H1 >Acknowledgement</h1> <h5> Any publication, whether printed, electronic or broadcast, based wholly or in part on these materials, should acknowledge the original data creators, depositors or copyright holders, the funders of the Data Collections (if different) and the UK Data Archive, and to acknowledge Crown Copyright where appropriate. <br> Any publication, whether printed, electronic or broadcast, based wholly or in part on these materials should carry a statement that the original data creators, depositors or copyright holders, the funders of the Data Collections (if different) and the UK Data Archive bear no responsibility for their further analysis or interpretation. </h5><H5>&nbsp;</H5> <h5><b>Copyright: </b><br> S. Becker and R. Evans </h5><H1>&nbsp;</H1> <H1>Disclaimer</H1> <h5> Although all efforts are made to ensure the quality of the materials, neither the original data creators, depositors or copyright holders, the funders of the Data Collections, nor the UK Data Archive bear any responsibility for the accuracy or comprehensiveness of these materials.<br> </h5><h5>&nbsp;</h5><h5>All rights reserved. No part of these materials may be reproduced, stored in, or introduced into a retrieval system, or transmitted, in any form, or by any means (electronic, mechanical, photocopying, recording or otherwise) without the prior written permission of the UK Data Archive.<br><br>UK Data Archive<br> University of Essex<br> Wivenhoe Park<br> Colchester<br> Essex C04 3SQ<br> United Kingdom<br>www.data-archive.ac.uk <br><br> </h5> <h2 style='page-break-before:always'> 6002 . Hidden Young Carers: the Experiences, Needs and Resilience of Children Caring for Parents and Relatives with HIV/AIDS in Tanzania and the United Kingdom, 2006<br> </h2><h3>&nbsp;</h3> <h3>Depositor:</h3> <h5>Becker, S. , University of Nottingham. School of Sociology and Social Policy</h5> <h3>Principal Investigators:</h3> <h5>Becker, S. , University of Nottingham. School of Sociology and Social Policy</h5> <h5>Evans, R. , University of Nottingham. School of Sociology and Social Policy</h5> <H3>Data Collector:</H3> <H5>Evans, R.<br></H5> <H3>Sponsor:</H3><H5> Economic and Social Research Council<br> <i class='myclass'> Grant Number:</i> RES-000-22-1732A </H5> <h3> Abstract: </h3> <h5>This cross-national study investigates the experiences, needs and resilience of children and young people caring for parents or relatives with HIV/AIDS ( young carers ) in Tanzania and the UK. This study explores similarities and differences in the experiences of this hidden group of young carers.<br> <br> The study aimed to understand children s everyday experiences of unpaid care work in families affected by HIV/AIDS; the push and pull factors influencing whether and why they take on care-giving tasks; the outcomes for children and families; the factors that can reduce children s vulnerability to negative outcomes and promote their  resilience ; caring relationships within families; and how young carers can best be supported in terms of policy and social welfare practice.<br> <br> The study's child-focused methodology acknowledged children s active roles in constructing their caring roles and the social determinants which influence these. Ninety-three semi-structured interviews were conducted with children and young people with caring responsibilities, parents/relatives with HIV and service providers supporting the families in Tanzania and the UK. Participatory methods were also used with the children, including drawings, written diaries and photographs.<br> <br> Further information on the study is available from the <a href="http://www.esrcsocietytoday.ac.uk/ESRCInfoCentre/ViewAwardPage.aspx?awardnumber=RES-000-22-1732" title="Hidden Young Carers ESRC award page">ESRC's award page</a>.<br> <br></h5><h3>Main Topics:</h3><h5>Children's and young people's everyday experiences of caring for a parent/relative with HIV/AIDS in Tanzania and the UK; resilience of children and young people and impacts of young caregiving and HIV/AIDS on individual children, the family, school and wider community in Tanzania and the UK; children's and parents'/relatives' experiences of Non-Governmental Orginisation (NGO) services and professional support in Tanzania and the UK; service providers' experiences of effective practices in supporting children caring for parents/relatives with HIV/AIDS in Tanzania and the UK; needs and requirements for support of young carers and their families.<br> <br> <br></h5> <h3>Coverage: </h3><h5> <i class='myclass'> Time Period Covered:</i> September 2006 - April 2007 <br><i class='myclass'>Dates of Fieldwork: </i> July 2006 - December 2006 <br><i class='myclass'>Country: </i> Tanzania; United Kingdom <br><i class='myclass'>Geography: </i> Arusha; Dar es Salaam; East Midlands; Eastern England; Greater London; Kilimanjaro; Manyara; South East England; West Midlands; Scotland <br><i class='myclass'>Spatial Units: </i> No spatial unit <br><i class='myclass'>Observation Units: </i> Individuals; Families/households; Institutions/organisations <br><i class='myclass'>Kind of Data: </i> Textual data; Individual (micro) level; Semi-structured interview transcripts, Diaries, Focus group transcripts </h5> <h3>Universe Sampled: </h3><h5> <i class='myclass'>Location of Units of Observation:</i> Cross-national; Subnational <br><i class='myclass'>Population:</i> Children and young people caring for a parent/relative with HIV/AIDS in Tanzania and the UK. Parents/relatives with HIV or guardians in Tanzania and the UK service providers from non-governmental organisations supporting children and families affected by HIV/AIDS in Tanzania and the UK. Group discussions with young adults with HIV in Tanzania. </h5> <h3>Methodology: </h3><h5> <i class='myclass'>Time Dimensions: </i> Cross-sectional (one-time) study <br><i class='myclass'>Sampling Procedures: </i> Purposive selection/case studies <br><i class='myclass'>Number of Units:</i> 93 semi-structured interviews; 2 focus groups; 21 life-story diaries <br><i class='myclass'>Method of Data Collection: </i> Face-to-face interview; Telephone interview; Diaries; Focus group; Life story books and drawings with children and young people, <br><i class='myclass'>Weighting: </i> Not applicable </h5><h3>Language(s) of Written Materials: </h3> <h5>Study Description: English and Swahili<br>Study Documentation: English<br></h5> <h3>Access: </h3><h5> <i class='myclass'>Access Conditions: </i> The depositor has specified that registration is required and standard conditions of use apply. The depositor may be informed about usage. See <a href='http://www.esds.ac.uk/orderingdata/termsandConditions.asp'>terms and conditions</a> for further information. <br><i class='myclass'>Availability: </i> ESDS Qualidata, UK Data Archive <br><i class='myclass'>Contact: </i></b> Help desk: qualidata@esds.ac.uk<br> </h5> <h3>Date of First Release:</h3><h5> 8 September 2008<br></h5> <h3>Date of Latest Release: </h3><h5>09 March 2009 ( 2nd Edition )</h5> <h3> Copyright: </h3> <h5> S. Becker and R. Evans</h5> <br><br> <h3> File last updated: </h3> <h5>31 October 2011</h5> </body></html>